Caring for Josh at the hospice

Twelve-year-old Josh Winrow has a rare epileptic syndrome named Lennox-Gastaut that causes potentially fatal seizures. He also has an intellectual disability and is non-verbal.

As well as providing expert medical care for Josh at Victoria’s only children’s hospice, Very Special Kids also support all members of the Winrow family, which includes his mother Vanessa, father Scott and eight-year-old sister Phoebe.

Very Special Kids Hospice, with its 24-hour nursing care, is the only place Vanessa can access when she needs to have longer stays away from Josh.

“When Josh goes to the hospice I can walk out the door and I know he’s going to be fine. There’s a real sense of security that he’s in good hands.”

“Josh loves going to the hospice. He’s got lots of doting carers that know him well. Earlier this year, I was able to take a weekend away with my sister, while Josh stayed at the hospice. The hospice allowed me to take the time out I needed,” Vanessa said

All the funds you raise at the 24 Hour Treadmill Challenge will go directly to children just like Josh, who receive 24 hour specialist care at Very Special Kids Hospice. To sponsor a runner visit