Our stories

When just two months old, Cassandra’s parents were told she would not last the year. The little fighter is still here!

Only five children in Australia have the disease Alex has so he and his parents make the most of every day.

Monique died 13 months after diagnosis leaving behind grieving parents as well as two siblings – her twin sister Zoe and older sister Olivia.

Steph’s advice to other sick kids: “I want other kids to look their disease in the eye and say ‘you suck, but I can beat you’.”

For any parents losing one child is devastating but for Simone and Rob they have lost two precious lives.

When Ruby was on life support, her parents Shari and Brad turned to Very Special Kids to navigate her end-of-life care.

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