A brother and sister gone too soon

Simone and Rob have endured more heartache than any parent ever should — welcoming four children into the world and, tragically, losing two precious lives.

In 2007, Lani was born with severe brain damage. Simone and Rob were told the devastating news that Lani wouldn’t survive long.

They couldn’t bring themselves to take Lani home — with the enormous responsibility of her medical care and the fear of losing her at any moment. This was the first time Simone and Rob came to Very Special Kids for support.

Simone and Rob were able to stay in our dedicated family accommodation for parents in situations just like theirs. Sadly, Lani died after only 16 short days.

A year later, Simone and Rob welcomed their son, Beau, into the world.

Shortly after Beau started school, warning signs began to appear. His behavioural abilities started to deteriorate, then he began to lose his physical abilities. An MRI confirmed Simone and Rob’s worst fears.

Beau had a serious brain condition and there was no way to treat it.

At Christmas time, when his condition deteriorated, Simone and Rob called on the support of Very Special Kids for a second time.

With the help of our empathetic and dedicated supporters, we could provide their family with the practical and emotional support they needed during their darkest times.