It takes a village to raise a child

My baby was going to die and I needed help.
We could not survive this journey alone.
Very Special Kids welcomed us into their care and we became Team Jack.


My son Jack was diagnosed with Spinal Muscular Atrophy. The muscles in his tiny body
were wasting away. One moment I was holding my beautiful baby boy, the next every hope and dream I had for his life came crashing down. I was told he wouldn’t survive past two. Have you heard the saying it takes a village to raise a child? Well Jack was a very special child and we needed a very special village. Jack needs 24 hour complex care and without the free counselling, support and respite I receive from  Very Special Kids, I don’t think Jack or I would have survived the last 16 years.

We have defied the odds and no matter how turbulent and unpredictable Jack’s illness has been, the support and care we receive from the team at Very Special Kids has remained constant and invaluable to my entire family.

Lisa – Mum and Captain of Team Jack

“The compassion and kindness you are greeted with at every point is unwavering and it’s been this way for 16 years. When Jack’s time comes I know we will have the support we need to make it through.”


“Everyone knows him inside and out. Not only do they care for his complex medical needs, but they understand him. They know his quirks, his fears, they know Jack. They love Jack.”

To support children like Jack, please click here.