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Sarah’s story – riding the extra mile

17-year-old Sarah Rogers is a happy teenager that enjoys music, going to school and playing with her brother and sister, but she also requires constant care for her basic needs.

Sarah has Cerebral Palsy, Spastic Quadriplegia, Epilepsy, Scoliosis and a vision impairment. She is unable to walk or talk, or eat by herself, and requires a BiPAP machine to regulate her breathing.

With Sarah often in and out of hospital, mum Lorelle Rogers says that the family focusses on enjoying each day.

“You never know with Sarah, when she could be in hospital. We just enjoy the time we have. She could have years left in her, but we don’t know,” said Lorelle.

The Rogers family turned to Very Special Kids when Sarah was 11, for respite care at Very Special Kids Hospice and emotional support.

Lorelle said that having access to Very Special Kids Hospice makes everything easier.

“With Sarah’s deteriorating health we have not been able to access other respite care services; she needs nurse’s care.

“I don’t have to worry when she’s at the hospice. She’s safe and she knows the staff.

“It allows me to have one on one time with our other children. It can be hard to find that time,” she said.

Ride the extra mile to support sick children like Sarah

On the 11-17 March the Chain Reaction Ultimate Corporate Bike Challenge is taking place to raise funds for sick children like Sarah.

The funds raised from the challenge are the catalyst for a large and important upgrade to the Hospice to ensure Very Special Kids can continue to provide benchmark standards of 24-hour nursing care for children with life-threatening conditions.

To sponsor a rider or to make a donation please click here.