We are a child, young person and family centred service. We put you at the heart of everything we do.

Our care and support extends to the whole family, with specific programs designed to support parents, carers, siblings, grandparents, and more.

As part of our ongoing service delivery process, each child/young person is medically reviewed and assessed every two years against the below criteria.

Children and young people most likely to be accepted into Very Special Kids include those with:

Group 1

Life-threatening conditions for which curative treatment may be feasible but can fail. Where access to paediatric palliative care services may be necessary when treatment fails, for example, cancer (usually solid tumours) and irreversible failure of heart, liver and kidneys.

Group 2

Conditions where premature death is inevitable, where there may be long periods of intensive treatment aimed at prolonging life and allowing participation in other activities.

Group 3

Progressive conditions without curative treatment options, where treatment is exclusively palliative and may commonly extend over many years.

Group 4

Irreversible, but non-progressive conditions causing severe disability leading to susceptibility to health complications and likelihood of premature death. Children or young people being referred under this category should fulfil most of the following criteria:

  • Total body involvement with poor head control
  • Severe scoliosis that compromises respiratory function
  • Ongoing need for intervention in order to maintain respiration
  • Regular apnoeic episodes
  • Poorly controlled seizures despite optimum treatment
  • Frequent unplanned hospital admissions
  • Underlying complex nutritional conditions which, without accurate assessment, would be life-threatening.

Reference: Together For Short Lives: A Core Care Pathway for Children with Life-limiting and Life-threatening conditions; 3rd Edition

If you have any questions, please contact our intake and assessment coordinator
on 03 9804 6221 or email