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Meet Ethan: Very Special Kids Advisor
October 30, 2026
Sixteen year-old Ethan is a Very Special Kids Advisor.
Sixteen-year-old Ethan is a Very Special Kids Advisor. In his role, he draws on his lived experience with a life-limiting condition to help shape our services and programs. Learn more about Ethan here.
Keep reading about Ethan’s strengths and favourite things to do to learn what makes him very special.
My strengths:
- I am “ME”
- I am proud of myself
- I am FUN
- I enjoy playing car games, drawing and cooking
Things I love:
My family
Watching Toy Story
The bath in the hospice (and the hoist and TV in the bathroom)
Travelling the metro tunnel by train
Playing tricks on people
My favourites:
Colour: blue
Food: McDonald’s
Music: Thomas the Tank Engine theme song
Fun fact: I like to play music by Luke Combs to annoy my Dad!
Why I was interested in the Very Special Kids Advisor role:
- I like leading tour groups and showing people around the hospice
- I want people to feel welcome and safe when they stay in the hospice
- I am fun and funny and I like to make people happy
- I like staying at Very Special Kids
What matters most to me:
I want to have opportunities to tell people about Very Special Kids.
I want other kids to enjoy staying here as much as I do. I want them to know it’s not scary to stay at Very Special Kids.
We hope you’ve enjoyed getting to know Ethan. Stay tuned as we introduce another Very Special Kids advisor next month.
