When people think about childhood palliative care, they can often be clouded by thoughts of ‘dying’ instead of ‘living’ life until the end.

This National Palliative Care Week, we had the privilege of addressing this often-unspoken topic on ABC’s The Conversation Hour  – acknowledging the moments of joy and happiness that can be experienced amongst sadness and grief.

Host Richelle Hunt, speaks in detail with Very Special Kids’ chief medical officer, Katie Moore and two very special parents who receive direct support from the organisation – Mel Schneider and Kat Barlow.