MENU

GO BACK

Four ways to spread cheer this Christmas

December 5, 2025

The end of the year can be a challenging time for many families we support. As school finishes and caring responsibilities intensify, we take extra care to support families during this time.

 

The holiday season brings a lot of joy but also highlights what is missing. For families who celebrate Christmas, it can be a mix of special and sad moments. We’re honoured to support them as they cope with grief and slowly build new memories.

 

That’s why your involvement matters more than ever. Every act of kindness can help bring comfort and joy in simple, meaningful ways. Here are four ways you can spread cheer this festive season:

Pick the Perfect Tree

Looking for a fresh Christmas tree? Malvern Xmas Trees is once again selling beautiful trees from the front lawn of Very Special Kids, with a percentage of proceeds supporting our work.

 

Where: 321 Glenferrie Road, Malvern
When: Saturday 29 November to Sunday 21 December (or until sold out)
Hours: 10am to 5pm weekdays, 7am to 5pm Saturdays and 8am to 5pm Sundays

 

Pop in, choose your tree, and know your purchase is helping families in need this Christmas.

Light up the season

Across our community, incredible supporters are decorating their homes with dazzling Christmas lights – not just to spread festive cheer, but to raise funds for Very Special Kids.

 

If you know someone who loves going all out (or maybe it’s you!), why not join in? It’s a beautiful way to celebrate the season and make a difference.

 

Find a display near you or sign up here.

The perfect stocking stuffer

Our Christmas Elf and Santa piggy banks are bringing plenty of holiday cheer this month!

For just $15, these festive little piggies make the perfect stocking stuffer or Secret Santa gift –and every purchase helps support children and families in need.

Order yours today.

Support families like Emma

This year’s Christmas Appeal shares the story of nine-year-old Emma, who lives with a rare genetic condition that causes cerebral palsy, epilepsy, and affects her hearing and vision.

 

Though Emma is non-verbal, she has her own way of communicating and expressing who she is, including doing some festive artwork with child life therapist Cassie at Very Special Kids House.

 

As her mum Ashley explains, Emma speaks with her heart:

“Cuddles are her absolute favourite thing…that tells you so much about her. She shows the world nothing but love, despite everything it’s thrown at her. But she is on borrowed time”

 

Emma’s mum Ashley appreciates every single Christmas, every photo they get to have with Santa as a family. Because they never know when it may be their last.

 

Your Christmas gift could help provide Emma’s family the comfort of knowing they won’t have to face the holiday season – and beyond – alone.

 

Read Emma’s story and donate here.

Every tree purchased, every light displayed, every donation made helps us provide vital care and support to children with life-limiting conditions and their families.

 

Thank you to all our supporters who help us make the festive season a bit brighter for families in our care.

GO BACK

100 miles for Jordy

June 18, 2025

In 2023, Dillon made a bold decision to take on a gruelling 100-mile Ultra Marathon in the You Yangs.

 

This race started as a pipe dream for Dillon, but it quickly evolved into something much more personal when he realised he could honour the memory of his late nephew Jordan – who sadly died at two months old in 2018.

Scheduled for 15 to 16 July 2023, the marathon would fall just before what would have been Jordan’s fifth birthday.

 

Dillon dedicated every step of his training, and every mile of the race to his nephew, raising valuable funds for a charity that had helped his family through one of the most difficult points of their life.

 

“Our entire family was very affected and Very Special Kids were an amazing support,” shares Dillon.

 

Jordan, pictured with his family, was born with Total Intestinal Aganglionosis, a rare and fatal condition that affects the large intestine. After Jordan’s parents Kristy and Josh received their son’s heartbreaking prognosis, all the family could do was take Jordan home and love him for the time he had left.

 

“When I got the call from Jordy’s parents, I just went into shock straight away and broke down crying.”

Life quickly became a blur for Dillon and his family, as they supported Kristy and Josh through Jordan’s end of life. Dillon recalls everyone under one roof, sleeping on mattresses for three-weeks as they prepared to say goodbye to his nephew.

 

“I remember Kristy and Josh were getting a lot of support from a lot of people ‘in the moment’, but as time passed, that dwindled a bit, whereas they’ve always felt supported by Very Special Kids.”

 

Very Special Kids has stood by the side of Jordan’s family throughout their grief and continues to provide access to expert counselling and a range of support programs, including free-of-charge holiday accommodation at Glen Osmond Farm. Located just outside the township of Woodend, the holiday accommodation offers families like theirs a tranquil place to relax and unwind together.

Five years on and buoyed by the support and encouragement from his partner Maddy and Jordan’s parents, Dillon took to the start line of the 100-mile challenge.

 

The race would see him running through the night in darkness and subzero temperatures, up mountains and, almost not making it due to hypothermia and dehydration.

 

“I remember running down a narrow dark corridor surrounded by trees, then my vision started going blurry… My head was spinning and I just lay down on the wet grass, as the temperature dropped to negative degrees.”

With his friend Sean running by his side, and wife Maddy and mum Vicki joining on the sideline for moral support, Dillon kicked back into action to take on the last leg of the race.

 

He went on to say every single step was agony, his legs were in so much pain but he never doubted he would finish, he had an incredible team behind him and he felt Jordan was there right by his side.

I talk to Jordan a lot when I run on my own. I remember when I started that last leg of the marathon I said out loud, Come on, Jordy, let’s go!‘.

 

After I’d made it through the race, I knew Jordan was definitely given me a helping hand there.

After initially setting the goal for $500, Dillon was encouraged by family and friends, as well as Very Special Kids, to increase the target to $1500. Within two hours he had reached his target and ended up raising more than $11,000 for Very Special Kids.

 

“I’ve never fundraised before, so had zero idea of what to expect. It blew me away how many people cared and how many people would reach out to me saying that they drew inspiration from it as well.”

 

When asked what advice he would give to another fundraiser, Dillon shared, ‘If you’re passionate about the cause that you’re raising the money for, just trust that it is going to a good cause, and you don’t have to feel bad asking people to donate to a worthy cause.”

 

Would you like to take on a challenge like Dillon in support of Very Special Kids?

 

Become one of our charity superstars in the upcoming Nike Melbourne Marathon on Sunday 12 October 2025. Click here to apply. 

GO BACK

The impact of community giving

April 2, 2025

In 2025, members of our community are choosing to wear their hearts on their sleeves, finding creative ways to fundraise for Very Special Kids and improve the quality of life of children and young people with life-limiting conditions.

 

Below are a few wonderful examples of how a fun activity can transform into a fundraising opportunity:

A very special chop

Rick Hemphill decided to take on his own personal challenge to fundraise for Very Special Kids, parting ways with his long locks!

With the generosity of his fellow colleagues behind him, the SW Accountants and Advisors Partner shared what motivated him to fundraise and raise close to $16,000:

I wanted to do something meaningful for families facing unimaginable challenges. My family’s own visits to The Royal Children’s Hospital opened my eyes to just how vital organisations like Very Special Kids are in providing care and support.

 

If shaving my head helps raise awareness and funds for these families, then it’s absolutely worth it.

If you are considering a big haircut in your future, perhaps consider following in Rick’s footsteps and setting up your own fundraiser.

Ride and drive day

When Heath and his friends organised a casual motorbike ride in northeast Victoria, they had no idea it would turn into an annual event that would raise more than $155,000 for Very Special Kids over the next 4 years.

The community Ride and Drive Day sees more than 80 cars and bikes travelling from Jerusalem Creek, Eildon, to lunch at the Bonnie Doon pub. Afterwards, the convoy continues for some fun and games at Snobs Creek Hotel before returning to Jerusalem Creek.

 

You can read more about Heath and his family’s personal connection to Very Special Kids here.

Redstock music festival

Music and community connection can be a powerful way to amplify a cause. Based in Red Hill, Redstock Music Festival offered a day of live music from The Crash Landers, and their supporting acts Tom and Justine.

 

Very Special Kids’ giant piggy bank, Penelope, marked the entrance of the venue and three of our volunteers enthusiastically engaged with music lovers to raise awareness for Very Special Kids, accepting donations, running the silent auction and selling raffle tickets. Altogether, this exciting day raised close to $16,000.

The Flinders Challenge

Many community groups and corporates like to show their social responsibility by supporting Very Special Kids with annual Golf Day events.

 

No one knows this better than the Flinders Golf Club who celebrated its 20th year of supporting Very Special Kids with The Flinders Challenge – raising more than $31,000 in 2025. We are deeply honoured by this longstanding relationship and immensely grateful for their continued generosity.

Summer Jam Basketball Festival

Based in St Kilda, this festival is a summertime celebration of Australian basketball culture. It was a slam dunk success, bringing together the best elements of a summer block party – with special guest appearances, DJs and food trucks.

 

This was the first year Sumer Jam Basketball Festival brought a charity partner onboard. Their two-ball knockout basketball activation raised more than $1,000 for the children and families in our care. We look forward to seeing the event grow in years to come!

Our community of fundraisers create ripples of support for Very Special Kids. Whether donations are big or small, each fundraiser helps us raise awareness of the very special support we provide to seriously ill kids, and their families, across Victoria.

 

If you’d like to explore ways you can become a community fundraiser click here.

GO BACK

Painting the town pink for piggy bank appeal

December 20, 2024

We are tickled pink to announce that the Piggy Bank Appeal has raised more than $120,000 throughout the month of November!

 

Once again, our long standing partners Commonwealth Bank and ALH Hotels joined our very special community to celebrate the Piggy Bank Appeal. As they’ve done for more than 25 years, Commonwealth Bank painted their branches pink, selling our unique piggy banks all month long. ALH Hotels, who have been supporting the Piggy Bank Appeal for 27 years, donated $1 from every garlic bread sold in venues across the state.

 

Many local and regional community supporters also collected donations and organised fundraisers in their communities.

 

The Piggy Bank Appeal is Very Special Kids’ longest running fundraiser and this year our giant piggy banks hit the road again, visiting communities such as the Inverloch Lotto and Commonwealth Bank branches in Rosebud, Wodonga, Shepparton and Corowa.

 

An army of dedicated volunteers hit the streets of the Melbourne CBD on Piggy Bank Day, Thursday 28 November, collecting donations, selling merchandise and spreading piggy cheer.

We’re so grateful for the ongoing commitment from all our partners and supporters. Thank you for helping to raise vital funds for the children and families in our care. We couldn’t do it without you!

GO BACK

A very merry festive season

November 20, 2024

The festive season is just around the corner and our very special community is hosting an array of festive fundraising activities! Here are a few ways you can support Very Special Kids this Christmas:

Very Special Christmas lights

Very soon, many houses across the state will be adorned with Christmas lights to fundraise for Very Special Kids.

If you are starting to decorate and want to light up your house for seriously ill kids, there is still time to get involved.

To sign up and make your display very special, click here.

Christmas trees

Malvern Xmas Trees are selling beautiful fresh Christmas trees again this year, and donating a portion of each sale to Very Special Kids.

Trees will be sold from the front lawn of Very Special Kids from Saturday 30 November until Sunday 22 December, from 10am to 5pm Monday to Friday, 7am to 5pm Saturday and 8am to 5pm Sunday.

To order online, including deliveries, click here.

Stonnington Christmas Carols

Very Special Kids is proud to be the selected charity of this year’s City of Stonnington Carols.

100% of proceeds from the sale of candles and event programs at both carols events will go to Very Special Kids.

Family Christmas at Central Park – Sunday 8 December, 5.30pm to 7.30pm, Central Park, 83-141 Burke Road, Malvern East
Carols at Como Park – Sunday 15 December, 7.30pm to 9.30pm, Como Park, 305-325 Williams Road, South Yarra

For more details, click here.

Support our Christmas Appeal

This Christmas, we have the joy of sharing five-year-old Nishan’s story.

Nishan has KCNQ5 encephalopathy, a rare and life-limiting neurodevelopmental disorder that affects just three known children in the world. Sadly, there is no cure for Nishan’s condition and experts have no proven treatment plan.

Nishan needs round-the-clock care and is often in hospital.

We try to make every day Christmas Day for Nishan because we don’t know if he will be with us tomorrow.

 

 – Sam, Nishan’s mum

You can support our Christmas Appeal and read Nishan’s full story here.

Running for Annie

March 18, 2024

The starting line of a marathon can stir up many emotions. But while preparing to hit the pavement at last year’s Nike Melbourne Marathon, Ryan never expected to see a familiar charity logo so close to his heart.

“I was lining up for the race when I saw a Very Special Kids t-shirt. I couldn’t believe it because my daughter was staying at their children’s hospice that same day.”

Ryan’s five-year-old daughter Annie has a rare life-limiting condition called Aicardi syndrome – Annie cannot eat by herself, she is wheelchair bound and requires round-the-clock support from her loving parents.

That’s why Very Special Kids is an essential lifeline to Ryan and his wife Sarah. As Victoria’s only children’s hospice, the charity helps families like theirs access emotional, clinical and practical support, free of charge.

Not only is respite care a much-needed break for parents, it’s also something children look forward to. The dedicated health professionals at Very Special Kids love to create a fun and safe environment, so children like Annie can make independent memories during their stay.

Very Special Kids is an amazing organisation.
It was great knowing Annie was in a safe place that was equipped with everything she needs. Just gave us so much peace of mind.

Ryan will be back running in this year’s Nike Melbourne Marathon but this time he will be joining as a Very Special Kids Charity Superstar. 

Him and his friend Jack will be joined by more than one hundred runners who have dedicated their run and fundraising to supporting very special kids like Annie. Funds raised will help the organisation provide holistic palliative care to seriously ill children and their families – through life, death, and bereavement. 

 

“It’s overwhelming to see so many people run for a cause that supports families like mine. I’m glad I can give back in this way.” 

 

Superstar Fundraisers receive a guaranteed, free entry into the event, including to the sold-out half and full marathons, while committing to fundraising at least $2000.  

 

If you’d like to take on the challenge and help Very Special Kids raise vital funds, you can apply to be a Charity Superstar here.

GO BACK

Driven by generosity

December 2, 2023

When Heath and his friends organised a casual motorbike ride in northeast Victoria, they had no idea it would turn into an annual Ride and Drive Day that would raise almost $80,000 for Very Special Kids over the next two years.

 

Heath and his wife Leesa were given a heart-breaking prognosis when their daughter Tahlia was just three months old.

 

Tahlia was born with cerebral palsy and epilepsy and required high-level care as she experienced complex health challenges day and night.

The family were referred to Very Special Kids as Tahlia grew older, and her care requirements increased.

 

Initially hesitant about what to expect, Heath, Leesa and Tahlia’s two siblings were astounded by the level of care and fun children and young people received. The family became involved in various programs and activities at Very Special Kids, including sibling days and volunteering.

Realising a weekend motorbike ride was an excellent opportunity for a fundraiser, Heath immediately knew he could raise awareness and vital funds for Very Special Kids.

 

In February 2023, the community Ride and Drive Day included 82 cars and bikes travelling 85km from Jerusalem Creek, Eildon to the Bonnie Doon Hotel.

 

The event raised more than $40,000 in memory of their very special daughter, Tahlia. 

Heath says, When it started off, we planned on raising about $3,000, we thought we’d do very well if we did that.

 

A lot of people have seen the videos and realised what Very Special Kids do and hadn’t heard of them before, and their generosity just has no end. It’s been amazing.